Gene Therapy May Cure Rare Diseases. Drugmakers Have Few Incentives leaving families desperate

(AP)-Robin Alderman faces an agonizing reality: Gene therapy might cure her son Camden's rare, inherited immune deficiency. But it's not available to him. In 2022, London-based Orchard Therapeutics stopped investing in an experimental treatment for the condition, Wiskott-Aldrich syndrome. And there are no gene therapy studies he can join. "We feel like we are the forgotten," said Alderman, who's advocated for her 21-year-old son since he was a baby. Collectively,

Soccer-Euro-Spain and Russia face UEFA racism charges

By Justin Palmer Reuters WARSAW, June 26 (Reuters) - UEFA has charged the Spanish Football Federation (RFEF) and Russian Football Union (RFS) for racist behaviour and racist chanting by their national teams' fans during Euro 2012 matches. "UEFA has opened disciplinary proceedings against the Royal Spanish Football Federation (RFEF) for the improper conduct of their supporters (racist behaviour, racist chanting) at the UEFA Euro 2012 Group C match against Italy

Dozens of immigrant and US-born small business owners face eviction as Mebane continues to grow

[caption id="attachment_8033" align="alignnone" width="704"] Buckhorn Road Flea Market[/caption] MEBANE, NC - The Buckhorn Road Flea Market off of Interstate 85 near Mebane in Alamance County was mostly empty Tuesday morning, a day after the Mebane City Council approved annexation and rezoning requests to pave the way for a R+L Carriers truck terminal to be built on the site. A former security guard busied himself removing a large, wooden sign from

Rent inflation remains an issue for small businesses

NEW YORK (AP) - Cost pressures continue to hurt small businesses. In particular, rent inflation is a pressure point for small businesses, according to new data from the Bank of America Institute. The average monthly share of rent in total payments through May is 9.1%, up significantly from the 2019 average of 5.9%. Some parts of the country have higher rents. In Las Vegas, for example, the average share of

Shaw University Conducts “Emergency” Fundraising Drive To Help 45 Students

By Cash Michaels Contributing writer Shaw University in Raleigh has an emergency on its hands, but this time it's trying to prevent a tragedy, not recover from one. As of July 1st, 45 of the small, private,  Baptist-affiliated historically Black university's students were in danger of not being allowed to register to return for classes next academic school year because their university accounts were not cleared, meaning they could not

This City Wants to Raze Black Properties, at the Cost of Generational Wealth.

By: Dr. Joseph Askew On the east side of Kinston, North Carolina, historic buildings still bear the original architecture. Whether it's on Queen Street, where formerly enslaved people became entrepreneurs, or Gordon Street, the neighborhood's significance is clear. The town, which is the county seat of Lenoir County, is grappling with decades-long change: a loss of industry, population decline, and high poverty rates. East Kinston, mere miles from downtown, is one

Rural hospitals are vulnerable to increasing cyberattacks 

NC Health News A policy paper examining cybersecurity and threats found that cyberattacks at health care facilities have increased more than 125 percent since last year, with rural hospitals being especially vulnerable. Jenny Niblock, chief clinical officer at Citizens Health in Colby, Kansas, is co-author of "Cybersecurity: A path to increase rural health care preparedness," a policy brief from the National Rural Health Association. The policy paper estimates that a patient's medical

Tuskegee Syphilis Study Whistleblower Peter Buxtun Has Died At Age 86 In CA

NEW YORK (AP) - Peter Buxtun, the whistleblower who revealed that the U.S. government allowed hundreds of Black men in rural Alabama to go untreated for syphilis in what became known as the Tuskegee study, has died. He was 86. Buxtun died May 18 of Alzheimer's disease in Rocklin, California, according to his attorney, Minna Fernan. Buxtun is revered as a hero to public health scholars and ethicists for his

Another veteran legislator steps down from the NC General Assembly

NORTH CAROLINA - Rep. Ashton Wheeler Clemmons announced Tuesday that she will be resigning from the North Carolina House of Representatives in August to start a new position within the University of North Carolina System. Clemmons, a Democrat, has represented Guilford County for three terms, serving most recently as the House Deputy Democratic Leader. Having worked as an elementary school teacher, a principal, and central office administrator, Clemmons founded the

Political ads on social media rife with misinformation 

BY  DAVID KLEPPER WASHINGTON (AP) - The online advertisement to Donald Trump supporters was clear enough: Click here, and receive a free Trump 2024 flag and a commemorative coin. All in exchange for taking a quick survey and providing a credit card number for the $5 shipping and handling. "You'll get two free gifts just by taking this quick poll in support of Trump," says the ad's narrator. The ad